One day at a time

Today Mason's platelets had dropped even more (even after transfusion) so he got transfused again. His potassium was also very low (I think 2.1) so they adjusted his hyperal and gave him some as well. Hopefully this will help. His incision looks a little better even though the left side is still opening up and has some fluid coming out of it. Overall, he was still in a lot of pain so they went up on his fentanyl to 5. We are so blessed to have nurses that are perceptive and really care and are good advocates for our sweet boy. I probably haven't said that enough but we are very thankful for them taking care of Mason, treating him as their own son, when we can't be there 24 hours a day. We appreciate you guys! So by the time Josh had got their this afternoon, Mason was resting comfortably. They had weaned down his vent settings but they went back up on his rate and re-positioned his tube because his last gas wasn't that great. Since they had increased his pain medicine, that in turn will affect his ability to breath so they wanted to increase his rate to help balance out everything.  He would have periods today where you could tell it was bothering him to take breaths (and use his stomach in general)  and he would just stop breathing and then he would de-stat and his heart rate would drop. All in all a bad combination. So basically we need for the swelling to continue to go down and his stomach to heal up. He still has decreased bowel sounds which means his stomach isn't working very well, so until it kicks into gear again they won't restart feeds. We will get there. All in time but we still just have to take one day at a time.