Day 101

Today we will be thankful. We got some good news from the MRI. No evidence of anymore infection and the fluid has decreased and overall decrease in the size of his ventricles. They are still enlarged due to the brain bleed but overall improvement. They did, however, find a clot in a vein in Mason's brain. This is all suspicious considering that there was also a new clot found last week in Mason's heart (superior vena cava). They are going to refer back to hematology to see if they can get to the bottom of this. The typical treatment for a clot would be a blood thinner but because of Mason's history this is NOT an option. Other cause for concern is his platelets dropped to 53 today (I think from 86). So I am hoping and praying that they can figure this out.

So that means Mason is off of the antibiotics. He is off of his pain medicine. He is off of the vent and breathing with CPAP. He is off the heat bed and we will see how he tolerates an open bed.  When he got extubated he kept sneezing over and over. It was so cute! He is also down around 5 oz. today so he continues to loose the extra fluid which is good. They increased his feeds to 2 ml per hour today as well. He had clothes on today and struggled to fit in his preemie clothes. And I got to hold him again! We are grateful for blessings big and small. He is definitely moving in the right direction and for that we are so thankful. God continues to hold him in the palm of His hand. 

Sweet boy working on opening his eyes. That is hard work!

When they said day 101 of life today it is hard to believe that it is has been 101 days since all of this started. In some ways it seems like a blur but in some ways it seems like years have gone by. A lot  changed in our lives 101 days ago. We are so thankful for each moment with our family of 4 no matter how hard it has been.