Wednesday, January 16, 2013

Ups and downs

Last week was a great week for Mason. He started smiling, got good news from Pt saying some positive things about him and giving me exercises to work on, and he started actually tolerating tummy time and his overall neck control increased a lot. This week not so much.

This week began by Mason being up all night very fussy, throwing up all his foods, and spiking a fever. This week sent us to the ED again where they did cbc, urine cultures, rsv and flu test, shunt series, and MRI. Mason still had a fever in the ED and the overall consensus is that he has a virus. He acts like he feels horrible and I hate to see him this way. I also feel like we have lost a week because I can't do his exercises or work with him because he feels awful. I am also getting frustrated with being home bound all the time. I worry about Mason a lot and any set back like this stresses me out. I wish it wasn't so but it is hard not to feel this way. I am tired physically and mentally. I do feel like God sent me a verse yesterday. It was Mark 11:24 I tell you, you can pray for anything, and if you believe that you've received i, it will be yours. True faith. I believe. In all the ups and downs.

Saturday, January 12, 2013

Sweet baby smile

He started smiling yesterday and we got a good report from a PT consult! Thank you Lord! More details later but time to feed this boy a bottle.

Wednesday, January 9, 2013

Tummy time

Who is that man in the mirror?

Sunday, January 6, 2013

Up to his old tricks

Mason keeps pulling off his oxygen and it is driving Josh and I crazy! Look closely at the picture and you can see his hands wrapped around the cord. Atleast when he does it he is still stating in the mid to high 90's. He is on .05 liters right now and doing pretty well. Thank The Lord!

Thursday, January 3, 2013

Good report

Today we had an appointment at the NICU follow up clinic for Brenners and we got good news. They are pleased with his progress and continue to be amazed by him. Everything is within the average range as far as neurologically...he does have some central core weakness (needs more tummy time) and some hypersensitivity in his lower extremity but nothing major (even within the normal range so far). No spasticity or flaccid movements which are all wonderful things and due to prayers of healing. We need to work on him following objects with his eyes and tracking and he still isn't smiling (which at around 3 months of age we would expect to be happening). The dr. made a good point though that the majority of his interaction with people have been negative as he sees it to this point but she believes that he will catch up. He is interacting with me when I feed him and will play with my fingers or shirt and look up at me. They continue to be amazed that he will take food by mouth and he wants to nurse quite often which is great news! She noted his movement is very fluid and purposeful...when he is done with the bottle or needs a break he will push it away with his hand. We are very thankful and continue to ask for your prayers because they are working. He weighs 14 lbs. which puts him in the 50th percentile and his height was 22 in. (still not on the chart) and head circumference was 37 cm (also not on the chart yet). His dr. said today that they see miracles every day in the NICU but then there are those instances when there are special cases where there are children that are supposed to be there. That defy all odds...and Mason is one of them. They still can't believe that he made it through all that he did and she was remembering the time he was under her care and had his second case of meningitis and was looking up at her knowingly, with his hand on his breathing tube, saying, "I'm ready to get this breathing tube out or ELSE!" Mason didn't know that he should be unconscious and was very sick. He was fighting and he made it thanks to all the prayers that were and are continuing to be spoken for him. Just wanted to give you a positive report here. We are very thankful and continue to pray that our boy will be healed!