Groundhog day

Some days I feel like I am stuck in the movie Groundhog Day. In this movie, actor Bill Murray finds himself stuck, re-living the same day over and over again. In our world, everyday seems the same but different in some ways. I keep waiting to wake up to a different reality but this is our new "normal". I had things planned so differently but I guess that is what happens sometimes. But we will take what we have been given and be thankful for it. We have 2 perfect little baby boys and are blessed that God has entrusted us to take care of them. And for that we will be thankful. Not to say that we don't get weary. Tonight, Josh said to me that he needs to start working out and get in better shape. He said this marathon is about to kill me (referencing the dr. that said Mason's journey isn's a sprint it is a marathon).

So really nothing new today. Last night, neurosurgery came in and adjusted the pressure on Mason's EVD and within an hour or so 9 more ml came out. But since then not much has released and the dr.'s are still saying his head feels full. Neurosurgery did come back tonight and mess around with it some more and no more came out and the nurse said he seemed pleased with everything. Really, it all comes down to the cranial ultrasound tomorrow. That should show them if there is still a large amount of hydrocephalus (extra CSF) on his brain. So please pray for good results tomorrow. Mason is now weighing around 3 lbs. 15 oz. now and he is 15" long. They increased his feeds to 3.9 an hour today and decreased his pressure level some on Cpap to 5 and he has handled all of this pretty well. We thank God for everything because it is truly his work in each milestone that is met. Mason is really starting to look like a baby dressed in his cute little clothes. Below is his latest picture.

"Mom, taking pictures are so boring!"