Ok, well after speaking with the dr.s today we have a plan for Mason and this upcoming week is probably going to be a busy one. I don't think I have mentioned much about it but Mason's ostomy bag has been giving them a really hard time and the skin around the stoma is beginning to break down and he also has some break down under his bag as well which could possibly lead to more infection if it is not taken care of. They are having a hard time keeping the bag on (and every time they have to change it it is like pulling a band aid off of a wound) and due to all of this they feel it is time to go ahead and re-connect his intestines from the perforation. He has reached the goal weight for this which was around 4 lbs. and he is doing well so this seems to take a precedent right now. We also talked to neurosurgery and an intervention is needed to help the left side of Mason's brain drain...so, after much consideration they are going to tap and pull the fluid off on Monday to relieve the pressure and if the fluid fills back up then when Mason goes down to the OR for his intestinal surgery next week then they will go ahead and put in an EVD on the left side of the brain. They also aren't sure if his right EVD is working appropriately so when they will also be evaluating this as well. That kind of gives us/them some time to evaluate his brain and see what it is going to do or need in the future. And it will go ahead and be a permanent fix for his stomach and he can go ahead and recover from that and move ahead. So they will be consulting with his surgeon on Monday to go ahead and put him on the schedule for surgery. Please begin to pray that all of this goes well and for the wisdom/guidance for the dr's, surgeons, and for us. This sure is a lot for our little man to have to go through but he sure has been a trooper thus far. We continue to thank ALL of you for your prayers and for your words of encouragement and for sharing Mason's story with others. We believe in the power of prayer and the more people that know our little boys story, the more chance that prayers of healing are being lifted up. It is hard to believe that our little baby is almost 11 weeks old!
It certainly sounds as if you have a busy week ahead but it also sounds like the doctors have come up with the absolute best plan to help Mason. Praying that everything goes well. Love this photo of him. Such a little sweetie.
ReplyDeletewe will began to pray for the busy week ahead and that God will work it out for little Mason!
ReplyDeletePrayers are going up for your family! May you all experience the love, comfort and healing of God as He walks with you through this journey.
ReplyDelete