Every day is a miracle

I find myself thanking God every day while I am saying prayers with Corbin or praying just throughout the day, "Thank you God for another day where our family is together." Even though we aren't "together" we are still a family. Maybe not under one roof. Yet. But God has a plan for all of that. Every day is a miracle and a day that we get to spend with both of our boys. I continue to thank all of you for your prayers because they do mean so much to us. Our little boy needs continued prayers for healing and for the guidance of the Drs. that are treating him
 Mason is really swollen and puffy today. I think his weight was 1090 grams (I think-I know it was 10 something). This is not "real" weight because the majority of it is fluid. They were worried about his stomach again so they ran a test and that came back normal. They were also worried about infection again but know the are covering their basis on that with the antiobiotics. Fungal infection results came back negative so he has no fungal infection. They also were worried about possible blood clot around the heart and the don't think it is that because swelling/edema would be more localized to that specific spot and they also did an echo-cardiogram on him last week that would have shown that. So Mason has what the Dr. described as "leaky vessels". We even had the nurse prac. come and try to explain it tonight and I am still not sure I understand but from the best of my understanding it is where fluids just escape from the veins (due to our bodies reaction) and go into the extra-vascular sections like the lungs, stomach, tissues, etc. So they are giving him steroids to try to tighten up the veins and a lot of Lasix to get rid of the fluid. His platelets continue to be low (as well as hemoglobin) which could also point to this (as well as the infection). He had some bad blood gases last night and they had to go up on the pressures but that is probably due to all the swelling and they have gotten better since they have started the medicine and have been able to decrease some of his pressures. He also got a cranial ultrasound today and we will find out the results tomorrow but the NP prepared us that most of these micro-premies like Mason do have to have the surgery for hydrocephalus where they go in and place a shunt so I am trying to prepare myself for that possibility. She said, unfortunately the odds are stacked agains him, but I don't believe in odds. I believe in God and he can do wonderful and miraculous things. Join with me in continuing to pray for miracles for our sweet Mason.