The good news is Mason is doing ok. He is tolerating his feedings and is breathing ok still (even though he is really sedated). We also found out today that he had not had anymore seizures for a 24 hour period. So for all of that we are thankful and God is good.
The down side is that I got some mixed stories today. Neurology came and told me that from their point of view they are pretty certain that the increase in fluid is what caused Mason to have seizures. He was glad that they did the cranial ultrasound because it gave them the information they needed to know. He is going to leave the EEG on and decrease his phenylbarb maintenance dose just to see if he can tolerate that and wake up a little. So his idea was that neurosurgery needs to do something to control the fluid. So when neurosurgery came up he said the EVD is draining fine and that this may just be how Mason is and he may not need a shunt. Which would be good news if there wasn't fluid pushing on his brain that neurology thinks is causing the increase in seizures. So we are having mixed emotions. Thankful that the seizures have gotten under control right now and that everything seems to be going ok. But frustrated from the lack of communication between all the disciplines. If some fluid needs to drain then we want it to drain! We aren't ready to give up on that yet. So please pray for us and for everybody to get on the same page.
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12 hours ago
Right now I am in agreement with you that a brain should not have extra pockets of fluid in it, that that is NOT the way Mason is meant to be and that he can not learn to suck or do anything while sedated and half-asleep. I pray for clarity of mind in the neurosurgery person so that he can see Mason as a person and not as a diagnosis. I ask these things in the name of Jesus.
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