Crazy day

So much for an uneventful MRI day. Atleast the MRI in itself was uneventful. Mason had an MRI at 10:00 this morning and his nurse noticed this morning that his EVD had come out of his head. The only thing that had been holding it in was tape (since all 3 sutures had come out on Friday). So neurosurgery was called to see what they needed to do. In the meantime, Mason started having seizures again (where he stops breathing and his stats go down into the 30's and 40's. His phenylbarb level was around 57 this morning and that on top of all of the fluid on his head was causing problems. By this time he was having them pretty often and they put him back on CPAP to see if this would help and called neurology to see how they wanted to adjust his seizure meds. They ended up loading him again with Kepra and increasing his dose to help him with his seizures instead of increasing the phenylbarb since they are still wanting him to be awake. By this point, Mason's new neurosurgeon had come up to put the EVD back in at his bedside. Apparently this was all a blessing in disguise because the old EVD really hadn't been draining out that much and the cranial ultrasounds were still showing a large amount of fluid on his left side. When the new EVD got put in 30 cc immediately came pouring out. Hopefully that will help with the seizures as well! He also had had a chance to look at Mason's MRI from this morning and said it actually looked better than expected (other than having a large amount of fluid on the left side). With a psuedomonas infection you would expect some holes in the brain (from the bacteria) and multi-pockets of hydrocephalous (which I thought had shown in the cranial ultrasounds). But the MRI did not show either of these. So that is really good news. Prayers are working and we are thankful. After the fluid release and the addition of seizure medicine Mason did so much better. It had been a busy day and he was exhausted! I think we all are too and hoping for a restful night!

Sleepy boy!