Don't give up

The other day as I was driving home from the hospital this song came on. Again, I feel like God was speaking to me. These past couple of weeks have been hard and we have been struggling but we will get through this by God's grace and through prayer. We are never going to give up on our little boy just as God never gives up on His children.  Please listen and remember that no matter what you are going through that help is on the way:

Mason is doing pretty good. They were able to wean his phenylbarb down and he didn't have any seizures. They are going to leave the EEG just to monitor within the next couple of days. They are checking his level tomorrow and that will give them more information. His feeds are going well and he will be off TPN tonight which is great. He is taking the majority of his medicine in his feeding tube and is able to get his supplementation (like vitamin D) since his feeds are almost to full. He has still been pretty out of it today but has woken up some. He has been having problem with his breathing (it has been short and shallow) which usually wasn't a problem with his but it has been since this last episode where all of his medicine poured into his belly. Well, PT and OT worked with him today and she noticed his lower back is really tight and asked me to massage it just to try to help him relax his muscles. Well, it was amazing to sit and watch him breathe SO much better when I did this so I really think his back must be really tight which is causing the problems with his breathing. 

As for neurosurgery's plan we are having a family meeting on Friday at 3. Please pray for us as everyone prepares for this. We are hoping that all of his different teams will attend in hopes of coming up with a plan for treatment, mainly his hydrocephalous. Please pray that this will be a good meeting with a gaining of a treatment plan for our son. We will definitely update you once we know something. We are so appreciative of all of your prayers. We believe help is on the way and we won't give up on our little boy.