Mason loves his "Mighty Mason" outfit from Aunt Tiffy and Uncle Nick.
Mason continues to do well and is tolerating everything. He is at full feeds as of now (20ml/hour) and they are going to be able to weigh him tonight because the EEG is gone. They are going to work to wean his phenylbarb so that he will wake up more and just monitor his seizures (since most of them are clinical). Our meeting ended up being more informal than expected and was interesting. We are probably going to try to switch neurosurgeons because we feel this is a better fit for us and more importantly for Mason. The plan is to go ahead and put in a shunt soon. The shunt is going to be difficult and Mason will probably have numerous shunt surgeries because of all of the complications he has had (infection/meningitis). It doesn't look promising as far as that goes but we believe that prayer can do wonderful things. If you could pray specifically for healing, especially in Mason's brain we would greatly appreciate it. It is also complicated because the tubing goes in Mason's stomach which has also been operated on. So all in all a complex case. It is necessary that Mason's abdominal cavity be able to absorb the CSF (cerebral spinal fluid) that drains from his brain. There are also multiple pockets of hydrocephalous which also further complicates thing. But nothing is too complicated for our God. And we believe that He is in control of this whole situation.
One of his sweet nurses, Cydney, made this for him! Check out the little ghost feet!
Hi, we have been following Mason's journey for a while now. I just wanted to tell you a little about our journey with our sweet Bella who has hydrocephalus. She was born at twenty four weeks and had a bilateral grade four ivh with some spillage on her brain. She had her first subgaleal shunt at five weeks and her second at four months. We met with our neurosurgeon when it was determined that the shunts were no longer working. She referred us to a dr in Salt Lake who does a new procedure to help kids with hydro avoid shunts. Bella was five months old when they did a choroid plexus coagulation, a septostomy and a third ventriculostomy. Currently she is ten months and shunt free. I know Mason probably isn't stable enough for this right now, maybe it wouldn't be a good fit for him but I wanted to tell you our story. I know when we were where you are I wanted all the info I could find. Feel free to ask any questions. We pray for mighty Mason all the time!
ReplyDeletePrayers for mighty Mason! With God ALL things are possible!!!!!!!!!!!!!
ReplyDeleteLove that little Mighty Mason outfit!! He is just adorable. Praying for him. Keep fighting!!
ReplyDeleteAs God told Abraham. "there is nothing too hard for me." As well as healing for Mason's brain, do you also want us to pray for you to be led to the right doctor?
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