Mason dialing up Dr. ("Uncle") Phil in the ED.
Sorry I haven't updated but we are back in the hospital again. Prayers needed. Mason had some difficulty with spitting up his feeds (both PO feeds and by g tube feeds). It progressively got worse as the week went on to where he couldn't keep any foods down. My peditrician had recommended adding some oatmeal to his feeds in an effort to help with reflux. That didn't work so they sent us to Brenner's ED because they said vomiting is a sign of a shunt malfunction. CT scan showed shunt was draining great...almost too good and ventricles were almost collapsed. They turned the setting to allow less drainage again but Mason still couldn't keep foods down so they admitted us. He spiked a fever last night of 102 (he also was INCREDIBLY AGITATED at his IV and frankly because he was in the hospital getting poked and prodded and he received vaccines on Thurs) so now they are watching for an infection and did the whole infection work up--blood cultures, urine cultures, nasal swab, flu work up. Labs were good, CRP elevated at 77. I asked could that be due to vaccines and she said that is possible but not a lot of research is done on that. So now we are in a waiting game. Everything has looked ok so far. Prayers appreciated to get us through this and to keep us all healthy (I am starting to get sick). Certainly getting tired of going back and forth into the hospital. Thankful to have our boys though and no matter what we are going through we have our family and can hold them close. God be with those who no longer can not.
Good grief, Charlie Brown!
ReplyDeleteSorry to hear Mason is back in the hospital. Hope that won't be for long and he can be back home soon. Praying for you and your family!
ReplyDeleteHi Lauren,
ReplyDeleteThis is Tara, Carrigen's mom, from the nicu and old B4 pod. :) I have been keeping tabs on Mason thru the blog and wow, he is one handsome little boy! I'm so sorry he is having another rough patch this week. This kid defines TOUGH though. He is soo strong. As r u and Josh. I know there might be more going on with his feeds but I know he is taking the bottle more and when I got Carrigen home I switched her to Beechnut rice and oatmeal. She did 100% better with that than Gerber. It is so much smoother than gerber. Before that the ped tried the similac fussiness and gas and that upset her tummy greatly. Maybe because she is a former gut baby like mason or could just be her. But I went back to enfamil infant with Beechnut rice and it has been fine since. Anyway, just wanted to share that with you if it helps down the road. Paul and I think of you guys often and pray for all of u always. Take care.
praying for Mason :)
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