2 months adjusted

Ok, just to start out and say I am not ignoring the blog. I think about updating all the time but most of the time I chose sleep over updating. Because I need it. Very much. Everything continues to be a BIG adjustment. Corbin is finally feeling it and is testing my patience. I am still trying to figure out things with Mason and get into a routine. We have changed around his feeding schedule (per nurses, pediatrician) and he is enjoying his extra milk and sleeping more...most of the time. He will be fussy during the day at times and needs attention...always while I am pumping. He must have a sixth sense about him. He would be content if I held him ALL DAY LONG. This morning after I had had no sleep because he was fussy last night his g tube came out. Luckily, the kids path nurse had brought in a folly catheter and talked to me about it on Monday so I was somewhat prepared. I just remember her telling me not to panic. So as I am running around the house, trying to find everything I just kept saying to myself don't panic don't panic. Phew. I ended up getting everything together and putting in the catheter as Mason ripped the oxygen off his face. Stomach stuff flying everywhere. Him crying. Good times. Don't panic. These are the days I will remember down the road but man I am ready for it to be a little easier. Goodness gracious! But thank the Lord through all things and all circumstances. Atleast I get to have days like this with Mason. So after I got in the catheter, re-tapped his nasal canula, and put some clothes back on to keep him from pulling out the catheter, I picked Mason up to comfort him and he looked at me and grinned. Silly boy.

This little by has been keeping me busy.

Mason is doing good overall. He has definitely started spitting up A LOT more than he was, usually after he takes a bottle. I try my best to burp him well but still we have spit up. We go to Kids eat on Tues. so I am sure they will assess that. He continues to roll over from from to back anytime I put him on his belly and has almost rolled over from back to front. He is SO strong and will grab at you, push the bottle away when he needs a break. I really can hardly believe and am amazed at his skills. Totally a miracle from God. He has great neck and head control and loves to sit up on my knee with just a little support. He loves to sit on his play mat and has fairly fluid movement while he is playing. He makes little baby squeaky noises and can put some weight on his legs. All of this is unbelievable considering he is really only 2 months old adjusted today. He takes some feeding by mouth once he gets settled. he continues to have a large degree of oral aversion and takes a bit to figure out if it is a bottle or some type of negative thing. I pray he will settle in and learn positive experiences. His sleep patterns are ok. He pitches a fit if you try to lay him flat on his back at night in a bassinet. I have got to figure out a solution to that. But overall we are doing ok. Just adjusting. They told me the first month was the hardest and I am praying that it only last a month! But God is good and we are blessed. Next week we have 3 appointments on Tues. Kids eat, audiological follow up (he didn't pass his left ear hearing screening; where his shunt is so expected), and follow up at neonatologist in Greensboro. Please pray for good news from dr.s and helpful suggestions and hints. We continue to ask for prayers for complete healing of our little boy (neurologically especially) and that he would begin to trust us and settle in to everything. Also prayers during this adjustment period and that I will keep my sanity and that Corbin will adjust. Sorry if this is scattered but remember I am sleep deprived! I am now Mason's 24 hour nurse among other things!