Ups and downs

            Tired out after a long day. 

The past few days have been full of ups and downs. At the beginning of the week we were trying to figure out how to make things work with the feeding sessions to set Mason up for success. His 10:30 meal was always a struggle because he had just finished up his tube feeding which made his reflux worse and more gaggy. They decided to split his tube feeds up so it wasn't such a large volume at one time and that did help us be more successful. Today was a difficult day. We did switch back to the puree Mac and cheese and Mason just seems to have a hard time with it. I think we will move on to something else tomorrow. As of now the goal is to get him jump started to develop muscle memory and strength to take possible 25% by mouth with more being a very long term goal. I am hoping and praying that we can even get there at this point but I'm not losing the faith yet. Please continue to pray for success. He has improved with the acceptance of bites and a more timely swallow and he is closing his lips over the squeeze bottle which is much improved. He is trying very hard which is more than I can ask.