Monday, October 19, 2015

We are here


We made it to day 1 of the feeding program. My mom came up and helped us get settled in and unload all of our stuff during the 8 weeks we will be here. We had quite the load since we brought equipment, toys, food, clothes for our time here. We plan on staying in a hotel (it does have a small kitchen) so that we can go home on the weekends and not move all of our stuff out! 

Today they got a baseline where I fed for two feeds and then his therapist fed him with no cues. Mason was tolerable of all the new changes and was his usual happy self! During the first feed he took 14g which is a decent amount (for him)! We brought gravy and they added new foods of yogurt, peaches, and carrots. We also met with the nurse practitioner and dietician that will be following, as well as other families in the program. Quite the eventful day for sure! We are excited that we have this opportunity and are hopeful that Mason will make good progress!  Please continue to pray for us (and for our family at home that we dearly miss) as the days come!

Rejoice in hope, be patient in tribulation, be constant in prayer. Romans 12:12

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