So sorry I haven't updated sooner! We have had quite a busy couple of weeks and both boys have been sick off and on. We have had quite the slew of appointments as well. Last week Mason started PT and she was positive about his skills saying mainly we need to work on symmetry. He continues to not have spastic or flaccid movement (which is a good thing) but we need to do some strength and easing up the muscles. She was also encouraging about his CVI (cortical visual impairment) because she says he holds his head well and moves his head appropriately where most children with CVI have very weird head movements because they move their heads in odd ways to look at what they are wishing to see. We also made a trip to Charlotte to explore ABM therapy. I think that is something we will pursue in the coming months and I will post more about that later. We finished up the week to visit the neurologist and the NICU follow up team. Both were encouraged with Mason because he is making progress with development. His head and center control has improved some, he brings arms to midline and grasps at textures, he is smiling to voice, he is putting hands and objects in his mouth (and just this week has really started sucking his thumb), he will make noises as if he is talking with us, and most importantly he has not had anymore seizures. The plan is if Mason continues to not have seizures by June then we will actively wean him off his seizure medicine. He is doing well with his breathing and is on minimal oxygen and we can try him on room air as long as he keeps his sat. level up. He was doing GREAT until he got this cold! We are SO ready for spring! Overall, he is making progress and for that we are greatly. We continue to pray for healing and for our sweet boy to be a miracle in the making. He tries so hard and is so sweet!
Mason and my Ray ray. So glad to finally get a picture of them!
Mason LOVES Wilbur the worm!
Reading is hard work!
"But I will restore you to health and heal your wounds, declares the Lord, because you are called an outcast, Zion for whom no one cares." Jeremiah 30:17
"For everyone who asks and keeps on asking receives; and he who seeks and keeps on seeking finds; and to him who knocks and keeps on knocking, the door shall be opened." Luke 11:10
I love reading positive things about this miracle boy!
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